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Main => Everything Else => Topic started by: Locke141 on November 11, 2019, 08:52:07 pm

Title: Wish me luck, having brain surgery
Post by: Locke141 on November 11, 2019, 08:52:07 pm
I havenít been super active lately. But have a lot of love for BYOAC and wanted to share that I
 Getting Brain serger tomorrow. With me luck. Will update When I feel up to it.
Title: Re: Wish me luck, having brain surgery
Post by: BadMouth on November 11, 2019, 10:18:14 pm
Saying good luck seems too little, but a little extra luck wouldn't be a bad thing to have.   I hope things go well for you.
Title: Re: Wish me luck, having brain surgery
Post by: opt2not on November 11, 2019, 10:50:27 pm
Good luck to you, Locke. Hope the procedure goes smooth, and your recovery is quick.  :cheers:
Title: Re: Wish me luck, having brain surgery
Post by: Howard_Casto on November 11, 2019, 11:29:24 pm
Hope you are just as nuts coming out the other side.   >:D  I'm sure everything will go well.   :cheers:
Title: Re: Wish me luck, having brain surgery
Post by: Drnick on November 12, 2019, 02:13:50 am
My wishes go out to you,  I'm sure all will be good.  I would say don't worry it's not brain surgery, but as it is  >:D
Title: Re: Wish me luck, having brain surgery
Post by: Titchgamer on November 12, 2019, 03:05:49 am
Good luck dude hope all goes well,
Title: Re: Wish me luck, having brain surgery
Post by: gamepimp on November 12, 2019, 09:19:40 am
We will keep you in our thoughts Locke.  :) Please do give us an update once you recover a little.
Title: Re: Wish me luck, having brain surgery
Post by: Locke141 on November 12, 2019, 09:49:58 am
Thanks all,

It has been a challenging year, with a new job I love. This Brain issue is very new and the unexpected. It seems that Iíll be ok but may take a few weeks to recover my speech.

I love this community as hope to make my way back soon. 
Title: Re: Wish me luck, having brain surgery
Post by: wp34 on November 12, 2019, 10:21:57 am
Good luck Locke.  Will be thinking of you.
Title: Re: Wish me luck, having brain surgery
Post by: Arroyo on November 12, 2019, 11:04:55 am
Good luck Locke, and get well soon.
Title: Re: Wish me luck, having brain surgery
Post by: markc74 on November 12, 2019, 01:26:36 pm
Best wishes from England mate.
Title: Re: Wish me luck, having brain surgery
Post by: leapinlew on November 12, 2019, 06:48:08 pm
Wear a football helmet to give them a little extra challenge. Spice up the surgeons day.

Good luck!
Title: Re: Wish me luck, having brain surgery
Post by: nexusmtz on November 12, 2019, 10:02:27 pm
I hope everything goes as planned. They're pretty good at these brain things these days.
Title: Re: Wish me luck, having brain surgery
Post by: Locke141 on November 13, 2019, 07:42:20 am
Hi all, Iím awake. Brain hurts but am recovering. Love you guys
Title: Re: Wish me luck, having brain surgery
Post by: newmanfamilyvlogs on November 13, 2019, 07:48:42 am
Hang in there. Glad to hear you're out the other side of the operating room.
Title: Re: Wish me luck, having brain surgery
Post by: wp34 on November 13, 2019, 08:27:40 am
Hi all, Iím awake. Brain hurts but am recovering. Love you guys

 :applaud: :applaud: :applaud: :applaud: :applaud: :applaud: :applaud: :applaud:
Title: Re: Wish me luck, having brain surgery
Post by: Mike A on November 13, 2019, 08:38:49 am
Glad you are still with us. :applaud:
Title: Re: Wish me luck, having brain surgery
Post by: pbj on November 13, 2019, 09:40:39 am
If you're still communicating and wiping your own ass, you're in good shape.

 :applaud:
Title: Re: Wish me luck, having brain surgery
Post by: javeryh on November 13, 2019, 10:05:38 am
Glad to hear things went well!   :cheers:
Title: Re: Wish me luck, having brain surgery
Post by: Arroyo on November 13, 2019, 12:55:20 pm
If you can write that after day one, then I'd say you are on your way!  Glad to hear it went well.
Title: Re: Wish me luck, having brain surgery
Post by: Locke141 on November 13, 2019, 08:00:30 pm
So far so good. Feeling better, need to recover more but for now Iím doing ok.
Title: Re: Wish me luck, having brain surgery
Post by: Howard_Casto on November 13, 2019, 09:17:40 pm
If you're still communicating and wiping your own ass, you're in good shape.

 :applaud:


He could only do 50% of that BEFORE the surgery.  I'll leave it to you to guess which one. 

Seriously though, glad you came through ok man. 
Title: Re: Wish me luck, having brain surgery
Post by: Locke141 on November 14, 2019, 03:58:54 pm
Lots of pain, but doing better.
Title: Re: Wish me luck, having brain surgery
Post by: Locke141 on November 16, 2019, 04:00:58 pm
Hi all,

Iím recovering day by day. I just wanted to thank everyone for there well wishes. The pain is getting better over time and My IQ seems to be slowly recovering.

Best,
Brian
Title: Re: Wish me luck, having brain surgery
Post by: Titchgamer on November 16, 2019, 04:23:32 pm
Hi all,

Iím recovering day by day. I just wanted to thank everyone for there well wishes. The pain is getting better over time and My IQ seems to be slowly recovering.

Best,
Brian

Good to hear! Well read lol

Keep up the good work man.
Title: Re: Wish me luck, having brain surgery
Post by: Locke141 on November 17, 2019, 09:55:43 am
Thanks all,

So Iím doing better and better. Will take some time to recover do to swelling and what have you but the MDíS all seem the think that I will recover. At the moment I need to go ZE, particular not to punch my body to hard while I recover. So fare it looks like Iíll recover back to normal. It also looks like it was not cancer, but wonít be confirmed next week.

Thanks to all for your support.
Title: Re: Wish me luck, having brain surgery
Post by: wp34 on November 18, 2019, 09:59:57 am
Great news Locke!
Title: Re: Wish me luck, having brain surgery
Post by: eds1275 on December 29, 2019, 03:53:40 pm
Thanks all,

So Iím doing better and better. Will take some time to recover do to swelling and what have you but the MDíS all seem the think that I will recover. At the moment I need to go ZE, particular not to punch my body to hard while I recover. So fare it looks like Iíll recover back to normal. It also looks like it was not cancer, but wonít be confirmed next week.

Thanks to all for your support.

I had something similar happen in 2017, although I don't have all your details I'm sure in some capacity I can relate. Here's the short version of mine:

-Headaches and anger issues from 2010-2017
-mid 2017 started having issues doing regular stuff but I'm a trooper so I just kept working (no employers are worth what I put myself through)
-August 2017 doctors thought I had crazy STDs because my nervous system was so messed up
-December they discovered I had a baseball sized tumour in my head, I wanted to finish up my christmas contract and delay the surgery (this is how messed up my thinking was) and they said my surgery was scheduled and I will have it IF I LIVE THAT LONG
-I couldn't afford a private room, but I got one anyways. They cut my face off and then went in through my forehead. Literally stapled my face back on.
-I had a cute catheter nurse for a few days and went home against doctor's orders for xmas

I healed up fine, I have never tried to take so much care of myself as I did after the surgery. The scars are hidden in my hair but on one side the hair didn't grow along the cut line so I have this white stripe. "conversation piece"

The biggest issues I face are reduced mobility on my left side (I've been playing guitar for over 25 years, this is awful) my mouth is kind of paralyzed on one side so I kind of talk out of one side of my mouth. There wasn't enough room in my skull so the tumour crushed my left eye and it works enough to be a problem. But by far, the hardest thing to deal with has been the abrupt personality change. It's like I don't even know me. Hopefully yours isn't as drastic, but I have sort of an internal identity crisis... this article has helped me and others around me to explain sort of what I am going through since I can't really put it into words myself:

https://www.psychologytoday.com/ca/blog/concussion-is-brain-injury/201805/brain-injury-grief-is-extraordinary-grief?fbclid=IwAR0lBPAEU-rbNpln19hooK_yfLEbM-fQs7Zh_VzKZ0j_TQP_2GQJulGVknU

Feel free to message me, and if you have issues dealing with things I urge you to go to a counsellor/phsychiatrist etc. If it's cost prohibitive at least in my area there were free or discounted options. There's a lot of negative stigma associated with it but we go to the doctors when our bodies are unwell and I think we should feel no shame doing it when our minds are unwell.
Title: Re: Wish me luck, having brain surgery
Post by: pbj on December 29, 2019, 04:51:27 pm
Iíve posted this before but:

If you live in Houston, and can fit in an MRI tube, I can most likely get you a free brain MRI.  Weíre in perpetual need of healthy subjects to establish baselines and the grad students have been scanned a million times already.  I know more than one person thatís found a small tumor during one of these scans.  Full recovery if found early.  I weigh almost 300lbs and I fit, so you will, too.

 :cheers:



Title: Re: Wish me luck, having brain surgery
Post by: Locke141 on December 29, 2019, 05:14:05 pm
Thanks eds1275 and PBJ,

I have been told that I am recovering very well from surgery. I have some issues around recalling what word I want to say often, but my ability to understand words is as normal.

Unfortunately, it turns out that I do have brain cancer. The good news is that itís a rare one and I have a very high odds of survival, over 90%. The bad news is that I have an on again off again fear that my wife, kids, and family may lose me. So much so that don't seem to fear my own loss of life, it's just an after thought.

The good news is my treatment, radiation and chemo, are going very well. I do feel on again off again slow intellectually, but have been told it's from the high dose of anti seizure meds, that literals slow how your brain works. The good news is that the seizure meds will be cut after the other stuff ends. 

Thankfully as a teacher in a strongly unionized school district, my coverage has been strong and my bills are very manageable.
Title: Re: Wish me luck, having brain surgery
Post by: jdbailey1206 on December 30, 2019, 08:07:26 am
The good news is that itís a rare one and I have a very high odds of survival, over 90%. The bad news is that I have an on again off again fear that my wife, kids, and family may lose me. So much so that don't seem to fear my own loss of life, it's just an after thought.

The good news is my treatment, radiation and chemo, are going very well. I do feel on again off again slow intellectually, but have been told it's from the high dose of anti seizure meds, that literals slow how your brain works. The good news is that the seizure meds will be cut after the other stuff ends. 


Locke

As a person being on seizure meds for the past 13 years the feeling of feeling slow is common.  I get those feelings most days and all I can say is push through and try not to let it get to you.  There is a light at the end of the tunnel if the meds are being cut. 

I also think we all have that feeling of not being able to care for our loved ones when we pass.  Its scary.  From the sounds of it you will be here for a long time so again try not to worry. 

I don't like to speak for the masses but remember Locke everyone here will be there for you.  Push through and don't give up.
Title: Re: Wish me luck, having brain surgery
Post by: Locke141 on December 30, 2019, 09:53:57 am
Thanks jdbailey1206,

It’s hard at times but give that my odds are so high and my brain surgery went so well that I’m also great full for the time I have now.

I’m happy I’m a Wrestler, As an adult I usually describe it in the past tense, but for now, I can use the boost of mentality to help me push my self hard. From G3 throw college I regularly pushed harder then most people ever have and it is definitely helping me with keeping my mind set and hart up. I might loss but Not because I didn’t didn’t push my self hard.