The NEW Build Your Own Arcade Controls
Main => Everything Else => Topic started by: Locke141 on November 11, 2019, 08:52:07 pm
-
I haven’t been super active lately. But have a lot of love for BYOAC and wanted to share that I
Getting Brain serger tomorrow. With me luck. Will update When I feel up to it.
-
Saying good luck seems too little, but a little extra luck wouldn't be a bad thing to have. I hope things go well for you.
-
Good luck to you, Locke. Hope the procedure goes smooth, and your recovery is quick. :cheers:
-
Hope you are just as nuts coming out the other side. >:D I'm sure everything will go well. :cheers:
-
My wishes go out to you, I'm sure all will be good. I would say don't worry it's not brain surgery, but as it is >:D
-
Good luck dude hope all goes well,
-
We will keep you in our thoughts Locke. :) Please do give us an update once you recover a little.
-
Thanks all,
It has been a challenging year, with a new job I love. This Brain issue is very new and the unexpected. It seems that I’ll be ok but may take a few weeks to recover my speech.
I love this community as hope to make my way back soon.
-
Good luck Locke. Will be thinking of you.
-
Good luck Locke, and get well soon.
-
Best wishes from England mate.
-
Wear a football helmet to give them a little extra challenge. Spice up the surgeons day.
Good luck!
-
I hope everything goes as planned. They're pretty good at these brain things these days.
-
Hi all, I’m awake. Brain hurts but am recovering. Love you guys
-
Hang in there. Glad to hear you're out the other side of the operating room.
-
Hi all, I’m awake. Brain hurts but am recovering. Love you guys
:applaud: :applaud: :applaud: :applaud: :applaud: :applaud: :applaud: :applaud:
-
Glad you are still with us. :applaud:
-
If you're still communicating and wiping your own ass, you're in good shape.
:applaud:
-
Glad to hear things went well! :cheers:
-
If you can write that after day one, then I'd say you are on your way! Glad to hear it went well.
-
So far so good. Feeling better, need to recover more but for now I’m doing ok.
-
If you're still communicating and wiping your own ass, you're in good shape.
:applaud:
He could only do 50% of that BEFORE the surgery. I'll leave it to you to guess which one.
Seriously though, glad you came through ok man.
-
Lots of pain, but doing better.
-
Hi all,
I’m recovering day by day. I just wanted to thank everyone for there well wishes. The pain is getting better over time and My IQ seems to be slowly recovering.
Best,
Brian
-
Hi all,
I’m recovering day by day. I just wanted to thank everyone for there well wishes. The pain is getting better over time and My IQ seems to be slowly recovering.
Best,
Brian
Good to hear! Well read lol
Keep up the good work man.
-
Thanks all,
So I’m doing better and better. Will take some time to recover do to swelling and what have you but the MD’S all seem the think that I will recover. At the moment I need to go ZE, particular not to punch my body to hard while I recover. So fare it looks like I’ll recover back to normal. It also looks like it was not cancer, but won’t be confirmed next week.
Thanks to all for your support.
-
Great news Locke!
-
Thanks all,
So I’m doing better and better. Will take some time to recover do to swelling and what have you but the MD’S all seem the think that I will recover. At the moment I need to go ZE, particular not to punch my body to hard while I recover. So fare it looks like I’ll recover back to normal. It also looks like it was not cancer, but won’t be confirmed next week.
Thanks to all for your support.
I had something similar happen in 2017, although I don't have all your details I'm sure in some capacity I can relate. Here's the short version of mine:
-Headaches and anger issues from 2010-2017
-mid 2017 started having issues doing regular stuff but I'm a trooper so I just kept working (no employers are worth what I put myself through)
-August 2017 doctors thought I had crazy STDs because my nervous system was so messed up
-December they discovered I had a baseball sized tumour in my head, I wanted to finish up my christmas contract and delay the surgery (this is how messed up my thinking was) and they said my surgery was scheduled and I will have it IF I LIVE THAT LONG
-I couldn't afford a private room, but I got one anyways. They cut my face off and then went in through my forehead. Literally stapled my face back on.
-I had a cute catheter nurse for a few days and went home against doctor's orders for xmas
I healed up fine, I have never tried to take so much care of myself as I did after the surgery. The scars are hidden in my hair but on one side the hair didn't grow along the cut line so I have this white stripe. "conversation piece"
The biggest issues I face are reduced mobility on my left side (I've been playing guitar for over 25 years, this is awful) my mouth is kind of paralyzed on one side so I kind of talk out of one side of my mouth. There wasn't enough room in my skull so the tumour crushed my left eye and it works enough to be a problem. But by far, the hardest thing to deal with has been the abrupt personality change. It's like I don't even know me. Hopefully yours isn't as drastic, but I have sort of an internal identity crisis... this article has helped me and others around me to explain sort of what I am going through since I can't really put it into words myself:
https://www.psychologytoday.com/ca/blog/concussion-is-brain-injury/201805/brain-injury-grief-is-extraordinary-grief?fbclid=IwAR0lBPAEU-rbNpln19hooK_yfLEbM-fQs7Zh_VzKZ0j_TQP_2GQJulGVknU
Feel free to message me, and if you have issues dealing with things I urge you to go to a counsellor/phsychiatrist etc. If it's cost prohibitive at least in my area there were free or discounted options. There's a lot of negative stigma associated with it but we go to the doctors when our bodies are unwell and I think we should feel no shame doing it when our minds are unwell.
-
I’ve posted this before but:
If you live in Houston, and can fit in an MRI tube, I can most likely get you a free brain MRI. We’re in perpetual need of healthy subjects to establish baselines and the grad students have been scanned a million times already. I know more than one person that’s found a small tumor during one of these scans. Full recovery if found early. I weigh almost 300lbs and I fit, so you will, too.
:cheers:
-
Thanks eds1275 and PBJ,
I have been told that I am recovering very well from surgery. I have some issues around recalling what word I want to say often, but my ability to understand words is as normal.
Unfortunately, it turns out that I do have brain cancer. The good news is that it’s a rare one and I have a very high odds of survival, over 90%. The bad news is that I have an on again off again fear that my wife, kids, and family may lose me. So much so that don't seem to fear my own loss of life, it's just an after thought.
The good news is my treatment, radiation and chemo, are going very well. I do feel on again off again slow intellectually, but have been told it's from the high dose of anti seizure meds, that literals slow how your brain works. The good news is that the seizure meds will be cut after the other stuff ends.
Thankfully as a teacher in a strongly unionized school district, my coverage has been strong and my bills are very manageable.
-
The good news is that it’s a rare one and I have a very high odds of survival, over 90%. The bad news is that I have an on again off again fear that my wife, kids, and family may lose me. So much so that don't seem to fear my own loss of life, it's just an after thought.
The good news is my treatment, radiation and chemo, are going very well. I do feel on again off again slow intellectually, but have been told it's from the high dose of anti seizure meds, that literals slow how your brain works. The good news is that the seizure meds will be cut after the other stuff ends.
Locke
As a person being on seizure meds for the past 13 years the feeling of feeling slow is common. I get those feelings most days and all I can say is push through and try not to let it get to you. There is a light at the end of the tunnel if the meds are being cut.
I also think we all have that feeling of not being able to care for our loved ones when we pass. Its scary. From the sounds of it you will be here for a long time so again try not to worry.
I don't like to speak for the masses but remember Locke everyone here will be there for you. Push through and don't give up.
-
Thanks jdbailey1206,
It’s hard at times but give that my odds are so high and my brain surgery went so well that I’m also great full for the time I have now.
I’m happy I’m a Wrestler, As an adult I usually describe it in the past tense, but for now, I can use the boost of mentality to help me push my self hard. From G3 throw college I regularly pushed harder then most people ever have and it is definitely helping me with keeping my mind set and hart up. I might loss but Not because I didn’t didn’t push my self hard.