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My son is coming home again tomorrow !!

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Level42:
Thanks for all the kind words !!

Cheffo: great comment, loved that and in fact it's the one game he keeps nagging me about because the yoke is currently "out of order" :D

Mustardtent:

About your question, no we don't have that feeling yet. At this moment he is pretty open for some diseases like the flu right now, so he'll have to recover further some weeks at home. Doctors told us school is the biggest source of infection you can imagine (children coughing in each other's faces  etc.) and that we should be very careful.

Apart from that, as you know, it will never be completely behind us. We already know he will have to undergo some more treatments in the future, during his entire lifetime probably. The valve and artery placed now will not last forever. As mentioned next time (which I hope is away a good chunk of time) the surgery will be much less demanding and a donor "part" will be used. I have no clue about how long those will last. However, if the periods of time between surgeries can be pretty long, he can grow to become just as old as anyone else. Then again, life offers no guarantees in any way.

Maybe it's because of this that we live a bit more by the day then we did before, put some things in different perspectives like we used to do and maybe are more conscious in enjoying our son every day then we would have done else.

orion:
I had no idea, your son was sick, but I am glad he's doing alright now! It's hard when your little ones are sick like that and in the hospital, I know your anxiety level must have been though the roof. It sounds like your kids a trooper though, and I'm sure in the future he will continue to handle this as such.

"I have no clue about how long those will last. However, if the periods of time between surgeries can be pretty long, he can grow to become just as old as anyone else. Then again, life offers no guarantees in any way."

I would be shocked if they wouldn't have the ability to grow these parts that he needs from his own stem cells in the near future. With advances like these, perhaps he isn't in for a life of surgeries ever so often. At any rate, I wish you and your family my best.

http://www.dailymail.co.uk/sciencetech/article-479481/Heart-patients-valves-grown-cells.html

http://www.sciencedaily.com/releases/2008/10/081021094212.htm

danny_galaga:

No prayers from me, as i have faith in human compassion and ingenuity. Glad it's all working out so far  :)

Level42:
Danny, thanks, I'm a humanist too, but I respect it if someone is religious.

Orion: I wouldn't exactly call him "sick". He's been doing pretty well up to now, and if people don't know they won't notice. Only when he's (I hope it will become _was_ now) doing sports or intensive playing/running he got tired very soon.

You are totally right about your last remarks. Time is really working in his advantage as medical science becomes better and better. 30 years ago, his future would have been very dark....

Again thanks to all for the best wishes !

orion:

--- Quote from: Level42 on October 15, 2009, 11:55:49 am ---Danny, thanks, I'm a humanist too, but I respect it if someone is religious.

Orion: I wouldn't exactly call him "sick". He's been doing pretty well up to now, and if people don't know they won't notice. Only when he's (I hope it will become _was_ now) doing sports or intensive playing/running he got tired very soon.

You are totally right about your last remarks. Time is really working in his advantage as medical science becomes better and better. 30 years ago, his future would have been very dark....

Again thanks to all for the best wishes !

--- End quote ---

Your welcome, I'm just glad everyone is doing well!

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