Wish me luck, having brain surgery

Main > Everything Else

<< < (6/7) > >>

Locke141:
Thanks all,

So I’m doing better and better. Will take some time to recover do to swelling and what have you but the MD’S all seem the think that I will recover. At the moment I need to go ZE, particular not to punch my body to hard while I recover. So fare it looks like I’ll recover back to normal. It also looks like it was not cancer, but won’t be confirmed next week.

Thanks to all for your support.

wp34:
Great news Locke!

eds1275:

--- Quote from: Locke141 on November 17, 2019, 09:55:43 am ---Thanks all,

So I’m doing better and better. Will take some time to recover do to swelling and what have you but the MD’S all seem the think that I will recover. At the moment I need to go ZE, particular not to punch my body to hard while I recover. So fare it looks like I’ll recover back to normal. It also looks like it was not cancer, but won’t be confirmed next week.

Thanks to all for your support.

--- End quote ---

I had something similar happen in 2017, although I don't have all your details I'm sure in some capacity I can relate. Here's the short version of mine:

-Headaches and anger issues from 2010-2017
-mid 2017 started having issues doing regular stuff but I'm a trooper so I just kept working (no employers are worth what I put myself through)
-August 2017 doctors thought I had crazy STDs because my nervous system was so messed up
-December they discovered I had a baseball sized tumour in my head, I wanted to finish up my christmas contract and delay the surgery (this is how messed up my thinking was) and they said my surgery was scheduled and I will have it IF I LIVE THAT LONG
-I couldn't afford a private room, but I got one anyways. They cut my face off and then went in through my forehead. Literally stapled my face back on.
-I had a cute catheter nurse for a few days and went home against doctor's orders for xmas

I healed up fine, I have never tried to take so much care of myself as I did after the surgery. The scars are hidden in my hair but on one side the hair didn't grow along the cut line so I have this white stripe. "conversation piece"

The biggest issues I face are reduced mobility on my left side (I've been playing guitar for over 25 years, this is awful) my mouth is kind of paralyzed on one side so I kind of talk out of one side of my mouth. There wasn't enough room in my skull so the tumour crushed my left eye and it works enough to be a problem. But by far, the hardest thing to deal with has been the abrupt personality change. It's like I don't even know me. Hopefully yours isn't as drastic, but I have sort of an internal identity crisis... this article has helped me and others around me to explain sort of what I am going through since I can't really put it into words myself:

https://www.psychologytoday.com/ca/blog/concussion-is-brain-injury/201805/brain-injury-grief-is-extraordinary-grief?fbclid=IwAR0lBPAEU-rbNpln19hooK_yfLEbM-fQs7Zh_VzKZ0j_TQP_2GQJulGVknU

Feel free to message me, and if you have issues dealing with things I urge you to go to a counsellor/phsychiatrist etc. If it's cost prohibitive at least in my area there were free or discounted options. There's a lot of negative stigma associated with it but we go to the doctors when our bodies are unwell and I think we should feel no shame doing it when our minds are unwell.

pbj:
I’ve posted this before but:

If you live in Houston, and can fit in an MRI tube, I can most likely get you a free brain MRI. We’re in perpetual need of healthy subjects to establish baselines and the grad students have been scanned a million times already. I know more than one person that’s found a small tumor during one of these scans. Full recovery if found early. I weigh almost 300lbs and I fit, so you will, too.

:cheers:

Locke141:
Thanks eds1275 and PBJ,

I have been told that I am recovering very well from surgery. I have some issues around recalling what word I want to say often, but my ability to understand words is as normal.

Unfortunately, it turns out that I do have brain cancer. The good news is that it’s a rare one and I have a very high odds of survival, over 90%. The bad news is that I have an on again off again fear that my wife, kids, and family may lose me. So much so that don't seem to fear my own loss of life, it's just an after thought.

The good news is my treatment, radiation and chemo, are going very well. I do feel on again off again slow intellectually, but have been told it's from the high dose of anti seizure meds, that literals slow how your brain works. The good news is that the seizure meds will be cut after the other stuff ends.

Thankfully as a teacher in a strongly unionized school district, my coverage has been strong and my bills are very manageable.

Navigation

 Message Index

Go to full version